Tavia Marlatt refused to leave the hospital until she has an at-home care plan. Submitted photo

B.C. epilepsy patient ends sit-in, awaits answers

Tavia Marlatt and her mother, Renee, met with Fraser Health officials on Friday, April 5.

After refusing to leave Vancouver General Hospital until her health care needs were met, Langley’s 22-year-old Tavia Marlatt is a step closer to receiving what she needs.

Tavia suffers from epilepsy, and can have anywhere from six to 50 seizures a day. Last week, she was at VGH undergoing a series of epilepsy tests that revealed she’s been having seizures from three parts of her brain.

READ MORE: Langley epilepsy patient refuses to leave Vancouver hospital until needs are met

Through a YouTube channel, Tavia documented her stay at the hospital, and said she was refusing to leave the hospital until she was given at at-home care plan.

“Basically, what the plan is, is stay here until my needs are met or the police come,” Tavia explained in a YouTube video.

Fortunately, officials from Langley Memorial Hospital agreed to meet with Tavia and her mother, Renee, last Friday to discuss health care options.

Renee explained the family has been asking the Fraser Health Authority for in-home care support at their family home since Tavia turned 19. She said there is a gap in funding from when children age out of school, and become adults.

Prior to the meeting, Renee said Fraser Health has repeatedly denied funding for in-home care, and has instead suggested Tavia live in a group home.

“We want funding released to have staff at home,” she added.

On the same Friday, Tavia agreed to leave the hospital on “good faith” that long-term funding will soon be provided.

Tavia was diagnosed with epilepsy at age seven, and the severity of it increased when she was eleven.

According to Renee, Tavia’s condition was more manageable when she was school-aged, because the family had the support of her being at school during the day, with people who could administer medications if needed.

Since becoming an adult, the medical system has failed Tavia, according to Renee.

“She needs support to be successful, and hasn’t been given the opportunity to be successful, and that’s hard to see. She [Tavia] says, ‘It’s hard to connect and make friends because they’re too independent for me.’ It’s hard to watch her suffer.”

Renee confirmed there is now short-term funding in place.

After Friday’s meeting, Renee said there is now a proposal for long-term services being drafted, and she is hoping to find out more information by the end of this week.

“They [Fraser Health] recognized there’s a gap in services,” added Renee.

“This isn’t just for Tavia, it’s for any person with epilepsy.”

Fraser Health confirmed they met with the Marlatt family.

“We continue to have ongoing conversations and work on a plan to support the patient’s needs,” Fraser Health said in a statement.

Currently Renee is unsure what type of funding they will receive, but hopes it will be long-term funding to access Choice in Supports for Independent Living (CSIL) – a self-directed home support services program.

“The benefit of having individualized funding is you can customize those supports to be responsive and flexible to a person,” added Renee.

Ideally, Renee is hoping for an in-home support system that is able to administer Tavia’s medications, bring her out into the community, and take her to activities such as her volunteer job.

This would also allow Renee to go back to work, since she wouldn’t have to stay home to care for Tavia herself.

“We’re very hopeful those supports will be in place. As a parent, it’s been really encouraging to see her [Tavia] taking a strong role and lead in advocating for people with epilepsy.”

Renee emphasized her and Tavia’s advocacy isn’t just for their own family needs.

“Our goal is that this isn’t just something for Tavia. Hopefully it will further support change for people with epilepsy or invisible disabilities.”

_________________________________

Is there more to this story?

Email: miranda.fatur@langleyadvancetimes.com

Like us on Facebook or follow us on Twitter

_________________________________

Just Posted

Canfor curtailing operations across B.C.

Low lumber prices and the high cost of fibre are the cause of curtailment

Nisga’a leader named UNBC chancellor

Dr. Joseph Arthur Gosnell is the first Indigenous leader to assume the role

Fire forces 36 people at Vanderhoof care home to evacuate

No one was hurt after the fire at Stuart Nechako Manor

Repen: FOI data proves Telkwans being ripped off by ICBC

Former Telkwa mayor received a response from ICBC and says the results don’t look good for residents

Fires still burning near Telegraph Creek

BC Wildfire Service assures residents of a proactive plan heading into wildfire season

VIDEO: Killer whales hunt for seals in Vancouver harbour

Bigg’s killer whales feed on marine mammals like seals, sea lions, dolphins and even other whales

Vancouver man, 19, charged in human trafficking case involving teen girl

The 16-year-old girl was reported missing and later discovered in Vancouver

Amber alert issued for 5-year-old Ontario boy

Ethan Montes is believed to be in the company of his mother, 47-year-old Juliet Mohammed

Blaine, Wash. inn owner, charged with smuggling people into B.C., granted bail

Robert Joseph Boule ordered to turn away anyone indicating a plan to enter Canada illegally

RCMP arrest B.C. man following threatening Vaisakhi Facebook post

Post made reference to pressure cooker bomb at massive Surrey parade

Another illegal dump of 200 Dungeness crab discovered in northern B.C.

DFO confident new site related to larger April 2 dump

Northern B.C. high school student reaches 100,000 followers on YouTube

Voice actor, animator, Jericho Fortune has more than 30-million views on his channel GTAGAMER222

University mourns student who died in B.C. canoeing accident

Andrew Milner, 19, was in his second year with the University of Calgary’s basketball program

Most Read